Saving Henry
By Laurie Strongin
THE IMMEASUREABLE LENGTHS OF A MOTHER DETERMINED TO SAVE HER SON
Laurie Strongin, author of SAVING HENRY (Hyperion; March 2, 2010; Hardcover; $22.99)
Two weeks after he was born, Henry Strongin Goldberg was diagnosed with the rare genetic disorder Fanconi anemia. His parents had never heard of Fanconi, but they quickly learned: the rare disorder is usually considered fatal. Facing every parent’s worst nightmare Laurie and Allen vowed to do everything possible to give Henry a chance at a full life. Laurie is available to talk about being one half of the first couple to undergo an extremely controversial procedure called preimplantation genetic diagnosis (PGD) to conceive a matched sibling that could serve as a donor and lifesaver to Henry. She can talk about the politics and controversy surrounding stem cell research, the psychology of losing a child, and how Henry’s light continues to shine through the Strongin’s Hope for Henry Foundation.